Doctors don't believe my POTS symptoms: what can I do?
Bring dated notes, describe what the symptoms stop you doing, and ask what the plan is if things continue. Clear evidence and clear questions make it easier for a doctor to act. If you still feel unheard, ask for a referral or a second opinion.
Bring evidence
- A POTS symptom diary with dates, scores and triggers
- Any measurements your doctor asked for
- A list of the ways it affects work, study and home life
Say it clearly
"These symptoms happen [how often]. They stop me from [what]. Could we discuss which tests or referral would help?"
Ask these questions
- What do you think could explain these symptoms?
- What tests or referral would help?
- What should I do if they get worse, and who do I call?
- Can you note my concern in my record?
If you are still not heard
Ask for another doctor in the practice, a referral to a specialist or a second opinion.
Frequently asked questions
What if my doctor says it is anxiety?
Ask what tests were done and what the plan is. Bring your diary.
Should I bring someone?
It can help: they can take notes and back you up.
Can I ask for a referral?
Yes.
For information only, not medical advice. For information only, not medical advice. Follow your care team's guidance, and use the number you were given for anything urgent.