How to explain ME/CFS to your GP
Describe what you could do before and what you can do now, bring dated notes of symptoms and crashes, and ask what the next steps are. A clear picture of daily impact helps your GP understand.
Prepare a one-page summary
- Before and now: what you could do before, and what you can do today.
- Main symptoms, with scores from 0 to 10.
- Crashes: what came before, how long they last.
- What helps and what makes things worse.
Use your ME/CFS pacing diary as a source.
Ask for
- What further assessments or referrals are appropriate?
- What support can you offer for daily life, work or study?
- Who should I contact if symptoms worsen?
If you feel unheard
Ask your GP to note your concerns, request a referral or ask for another clinician.
Frequently asked questions
How do I explain ME/CFS to my GP?
Use before and now, key symptoms with scores, and crash patterns.
What if tests are normal?
Ask what the plan is and what other assessments exist.
Can someone come with me?
Yes, to take notes or speak for you if needed.
For information only, not medical advice. For information only, not medical advice. Follow your care team's guidance, and use the number you were given for anything urgent.